We then got a tour of PCH. It really hit us during the tour that everything would be happening so soon. For me it was seeing where I will have to let go of Keegan and put him in the doctor's hands and of course God's!
Later, we had meetings with the two surgeons, Doctor Shafron and Doctor Joganic. Very informative! Dr. Shafron will start the procedure and Dr. Joganic will finish things up with re-constructing his skull. The doctors gave us length of surgery times varying from 2-4 hours. Anesthesia will take 45 min- 1 hour so we are thinking that was factored into the 4 hour one. They will make the incision from ear to ear in a straight or zig zag pattern and will then open the fused suture and re-construct and piece the skull back together in elliptical pieces. plates will be ultrasonically fused to his skull to prevent the brain and skull from continuing to grow how it has been. These surgeries are performed weekly and Keegan's condition is the most common form.
The doctor confirmed that they do not know why this happens and that Keegan was, in fact, born with this. He told us that this happens in utero to 1 in every 2000 or so. There is also a slightly higher chance that a future kid could have it, although it is very rare. After the surgery, he will not need a protective helmet but Dr. Joganic suggested a bicycle helmet because he is so active. I , of course, think its a great idea.
We were able to get our minds off of tomorrow with a nice steak dinner with ALL of our parents. Keegan kept our minds busy with his entertainment and energy!
We are planning on arriving at 11am for his 12:30pm surgery. After the surgery, he will be in PICU anywhere from 1-2days and then moved to a regular room for another 2-3 more days. There is a couch in the PICU and a family room in the unit with showers, couches, tvs, refrigerators, microwaves, laundry facilities etc.
Thank you for all the thoughts and prayers~ We will update you all when we can
♥
Tara
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